Thank you for visiting my personal campaign page! This is my second year to join the walk.  Last year, I enjoyed walking with everyone.  I really liked the fire truck. I have Prader Willi Syndrome.  I have braces that I wear on my legs because of low muscle tone.  I had spinal fusion surgery last fall.  I need to have surgery because I am tongue tied and have a difficult time drinking.  I do not want to be hungry all the time.  I am hoping to raise money for the Foundation for Prader-Willi Research. All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join me and donate now!

Thanks, Shyann