Thank you for visiting my personal campaign page! Our daughter, Megan, has Prader-Willi syndrome (PWS) and I am helping to raise money for the Foundation for Prader-Willi Research.
At three and half years of age Megan tells us she is "Hungy" while she is eating as well as soon after she has finished eating. It hurts to hear those words and know there is nothing we can do to change that feeling (yet). Calorie restricted diet for life. Physical delays, speech delays the list goes on. Never having children of her own. OCD and Autism Spectrum Disorder are another part of PWS. Daily injections (her poke) of Growth Hormone to help improve her tone and allow her to be stronger so that she can spend more energy so that she can consume just a little more food in a day. Appointments with a speech therapist, physical therapist, occupational therapist, social worker (to help with behaviour issues) and the endocrinologist. The stress, worry and love we feel for our little girl in hopes that she does feel and have a full future. Help us and donate to make our hopes for Megan and all people with PWS come true.
All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join me and donate now!