Friends...Friends of my two sons...Thank you for visiting my personal campaign page! A sweet little friend of mine, Miss Emelyn, was born this October 2011 with Prader-Willi Syndrome (PWS) and I am helping to raise money for the Foundation for Prader-Willi Research. All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan. Emelyn's Mom Miranda is hosting a walk at Louise McKinney Park in Edmonton on Sunday, June 17, 2012, at noon. You are more than welcome to join us and walk for Emelyn and other children, or donate to the One SMALL Step walk on my personal campaign page.
Some characteristics of this disorder are low muscle tone, poor feeding in infancy, developmental delays, learning disabilities and always feeling hungry due to the hypothalamus (a part of the brain) not working correctly.
There is at present no cure for Emelyn's Prader-Willi Syndrome. However there is a lot of research taking place worldwide. This research however needs funding. I am joining Emelyn's family and friends to help find a way to eliminate the challenges that Emelyn will face in her life.
For anymore questions, or if you would like to help me in running the event, know of anyone that would like to donate anything to this event, or anyone that would like to sponsor this event, please contact me on *my cell 780-945-1617* , through email *email@example.com* or message me on Facebook.