Aller au contenu principal

Bandeau de la Marche

Connexion
Trouver une marche
Trouver une marche près de chez moi
  • English
  • Accueil
  • Tableau des meneurs
    • Lieux
    • Collecteurs de dons
    • Pays
  • Evènements
  • Faire un don
    • Trouver un participant
    • Info pour les donateurs
    • Cadeaux associés
  • En apprendre davantage
    • À propos de nous
    • Plan de recherche
    • Héberger une marche
    • Partenariat communautaire
    • Contactez-nous

Où en est-on?

Ellie-Belle actuellement en
2nd Place
with CA$820.00 des dons
CA$895.00 behind 1st place
Sophie Bean
  • Nous avons collecté $820.00
  • Vers notre objectif de : $10,000
Faire un don
Si vous ne pouvez pas faire un don en ligne, vous pouvez imprimer un formulaire de don.

Vous êtes ici

Accueil

Ellie's One Small Step Campaign Page

Ellie's One Small Step Campaign Page

Event Details

QuandSunday, August 26, 2012 10 AM
OùBurnaby Fraser Foreshore Park
DétailsDetails coming soon
Pour plus d'informations
Hôte Cindy Thomson
Promesse de donFormulaire de promesse de don
Carte
  • Partager

Ellie is our world. She is the most amazing little girl, with a very old soul, and the power to draw anyone, and everyone in. She commands love. She is love, and she is our light.

Ellie has Prader-Willi Syndrome. Because of PWS, she spent half of her first year in hospital. 

She's so full of potential, and constantly blowing us away with her progress. Her strength is amazing, she's achieving motor skills they told us would take years. But, and it's a big one, her doctors believe she's experiencing early onset Hunger. Ellie is hungry every minute of every single day. She wants food all the time, and if it is in sight, it's all she sees. She will eat everything that's offered, but her metabolism is slow, so she isn't allowed to eat as much as she would like. It is so hard. 

I hate seeing her cry after meals, uncomfortable because she's HUNGRY. We have to cure this.

All donations go directly in support of research, through the Foundation for Prader-Willi Research. Every dollar counts, and every dollar is appreciated.

If you can't give, we understand, times are tough. What you can do, is help us raise awareness. Tell your friends about PWS. Awareness garners interest, interest draws in donations, donations fuel research for treatments and a cure.

Please, help our Ellie.

We love you.

Ellie-Belle Donors

NomMontanttrier par ordre croissantLieudateMessage
Kate and Krista and ThomCA$200.00Vancouver, BCMar 18, 2012old friends, sending great love to you and your sweet family....
M. BurrowsCA$200.00Delta, BCMar 27, 2012
AnonymousCA$100.00Delta, BCMar 27, 2012
Tout voir
  • (c) 2011 Foundation for Prader-Willi Research. Tous droits réservés
  • Contactez-nous
  • Nous rejoindre sur Facebook
  • Suivez-nous sur twitter