Ellie is our world. She is the most amazing little girl, with a very old soul, and the power to draw anyone, and everyone in. She commands love. She is love, and she is our light.
Ellie has Prader-Willi Syndrome. Because of PWS, she spent half of her first year in hospital.
She's so full of potential, and constantly blowing us away with her progress. Her strength is amazing, she's achieving motor skills they told us would take years. But, and it's a big one, her doctors believe she's experiencing early onset Hunger. Ellie is hungry every minute of every single day. She wants food all the time, and if it is in sight, it's all she sees. She will eat everything that's offered, but her metabolism is slow, so she isn't allowed to eat as much as she would like. It is so hard.
I hate seeing her cry after meals, uncomfortable because she's HUNGRY. We have to cure this.
All donations go directly in support of research, through the Foundation for Prader-Willi Research. Every dollar counts, and every dollar is appreciated.
If you can't give, we understand, times are tough. What you can do, is help us raise awareness. Tell your friends about PWS. Awareness garners interest, interest draws in donations, donations fuel research for treatments and a cure.