Skip to main content

Walking Header

Login
Find A Walk
Find a Walk Near Me
  • Français
  • Home
  • Leader Board
    • Locations
    • Fundraisers
    • Countries
  • Events
  • Donate
    • Find a Participant
    • Info for Donors
    • Matching Gifts
  • Learn More
    • About Us
    • OSS Funded Research
    • Research Plan
    • Host A Walk
    • Community Partnership
    • Contact Us

How are we doing?

Ellie-Belle currently in
1st Place
with CA$14,331.35 in donations
  • We have raised CA$14,331.35
  • Toward Our Goal of: CA$10,000
Donate Now
If you are unable to donate online, please print out a donation form.

You are here

Home

Ellie's One Small Step Campaign Page

Ellie's One Small Step Campaign Page

Event Details

When2012-09-22 10:00am
WhereLadner Harbour Park
Details Visit our Facebook Page for the most up-to-date information: http://facebook.com/OneSmallStepLadner Welcome to Ladner!! Our little village really ...
Get more details
Host Susanne Szabo-MacDonald
PledgePledge Form
Map
  • Share

Ellie is our world. She is the most amazing little girl, with a very old soul, and the power to draw anyone, and everyone in. She commands love. She is love, and she is our light.

Ellie has Prader-Willi Syndrome. Because of PWS, she spent half of her first year in hospital. 

She's so full of potential, and constantly blowing us away with her progress. Her strength is amazing, she's achieving motor skills they told us would take years. But, and it's a big one, her doctors believe she's experiencing early onset Hunger. Ellie is hungry every minute of every single day. She wants food all the time, and if it is in sight, it's all she sees. She will eat everything that's offered, but her metabolism is slow, so she isn't allowed to eat as much as she would like. It is so hard. 

I hate seeing her cry after meals, uncomfortable because she's HUNGRY. We have to cure this.

All donations go directly in support of research, through the Foundation for Prader-Willi Research. Every dollar counts, and every dollar is appreciated.

If you can't give, we understand, times are tough. What you can do, is help us raise awareness. Tell your friends about PWS. Awareness garners interest, interest draws in donations, donations fuel research for treatments and a cure.

Please, help our Ellie.

We love you.

Ellie-Belle Donors

NameAmountLocationsort ascendingdateMessage
Judith PowellCA$50.00Vancovuer, BCJan 27, 2012
Crystal P. (one of Ellie's NICU Nurses : ) )CA$20.00Vancouver, BCFeb 02, 2012Susanne, I wish you and your family all the best in your fundraising efforts
carole shawCA$50.00Vancouver, BCFeb 05, 2012thinking of you .Gail is my God-daughter. know how proud she is to be Ellie's
see all
  • (c) 2011 Foundation for Prader-Willi Research. All Rights Reserved
  • Contact Us
  • Connect with us on Facebook
  • Follow us on Twitter