Thank you for visiting my personal campaign page! This is our 3rd Year Hosting the One Small Step for Prader Willi Syndrome. We are overwhelmed by the love and support of our family, friends and community. Words can not express how grateful we are for all you have done over the years of Matthew's diagnosis. He turned 7 yrs old in January and we can see how much he has grown. He is 4ft 3" and his weight is inline with his height. We maintain his weight with a healthy diet and incorporate as much physical activity as possible. He is participates in PIP - "Players in Progress" - which is a basketball program that teaches skills of ball handling, balance & coordination, which we all know are difficult skills to adapt for children with Prader Willi Syndrome. He also takes swimming classes. I am grateful for these two organzations that allow Matthew to participate since these programs are for a typical child. He also takes piano lessons. He doesn't know how to read the music but he knows the keys. Life has to be more structured as Matthew gets older. He often talks about "what's for breakfast, lunch & dinner? He isn't a food seeker but food is always on his mind. He is the love of my life and he melts everyones heart that he comes in contact with. We are hopeful for a better way of life for him since a cure is inevitable because of the genetic makeup. We are unclear what the future may hold for our children suffering from Prader Willi Syndrome and we will do almost anything to find a better quality of life. This is why we have joined with other parents to try and raise money for research. This fundraiser means the world to us & would love your help in raising money for a cure. All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join me and donate now!