My grandaughter Emelyn was born on October 21, 2011 with Prader-Willi syndrome (PWS) and I am helping to raise money for the Foundation for Prader-Willi Research.
Prader-Willi Syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS is recognized as a common genetic cause of childhood obesity.
The common characteristics include small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early onset childhood obesity), hypotonia (reduced muscle strength) at birth, insatiable hunger, extreme obesity and intellectual disability.
All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org