The daughter of a friend of mine has Prader-Willi syndrome (PWS). It's a disease that affects approximately 1 in 30,000 births. In their early years, PWS babies have very low muscle tone. It takes a long time to learn how to hold their head up, or stand, or walk. They can't eat on their own and have to be tube-fed. Around the age of 4, the insatiable hunger sets in. If they are not watched 24/7/365, with strict routines and nutrition, they can become morbidly obese. Their hypothalamus "shuts off" and no longer sends the message to their brain that they are full. So they eat, and eat, and eat, and don't ever feel full.
On August 19th, my kids and I will be joining the ONE SMALL STEP for Prader-Willi Syndrome walk/run in support of my friend Susanne, and her beautiful daughter, Ellie. I have pledged to raise $500 - PLEASE join me in support of Ellie and donate today.
NOTE: The youtube video linked to the left is Susanne talking about PWS, and you get to meet her daughter, Ellie!