Take One Small Step With

Take One SMALL Step for Layne

2015
$15,841 of $6,000 Raised
Return to One SMALL Step, Sauquoit, NY

About Take One SMALL Step for Layne

As you all know Layne was diagnosed with Prader-Willi Syndrome. We have already overcome so many obstacles, but Layne’s future is guaranteed to be full of even more.

Layne looks like your average 9 month old. He has some delays but at this time they aren’t significant. We are currently in the “good” phase of Prader-Willi Syndrome. He eats good. He sleeps good. We can bring him anywhere. He hardly fusses or cries.

But it won’t be long before a feeling of insatiable hunger will overcome him. This feeling will never, ever go away. If you can only imagine what you feel like when you are “starving” and how that affects you. Imagine feeling like that every single second of every single day for the rest of your life?

Many also do not know the extent of the this “hunger issue” people with Prader-Willi Syndrome face. It isn’t a matter of saying “no, you can’t have that” or teaching our children how to eat healthy. It’s a matter of hiding food, hiding things that smell good, hiding your pet food, locking your cupboards, locking your doors, watching them in grocery stores, and 24/7 supervision for the rest of their lives.

I realize and I am okay with the fact that Layne will probably never have a family of his own. I’m okay with the fact that he will need special education in school. I am okay with the fact that he may never drive a car. I’m okay with the fact that he won’t be the best athlete. I am okay with the fact that as parents we have to work a million times harder than many other parents do. But I am NOT okay with this “hunger issue” which of course leads to many many other issues. Layne is still so young and there IS time. There is time to find something that will make people with Prader-Willi Syndrome feel full or at least ease that hunger pain.

I don’t normally ask for help but right now I AM. Layne and so many others NEED your help. Every single cent of your donation will go towards research and finding a cure. Thank you to everyone that has shown support and dedication to helping Layne and helping to raise awareness and finding a cure. We love and appreciate you all!

Please create your own One Small Step Page to raise money and help reach our Sauquoit area goal of $15,000!  

messages from the donors

    • "
    • We love you guys!!!
    • Steve & Yvonne Ludlow
    • "
    • Good luck, glad we could help. See you on June 9th
    • Chenango County Law Enforcement Association
    • "
    • We love and support you and Layne! You are an inspiration and always have been!
    • Oneonta State Girls
    • "
    • God Bless Layne, Linsey and Tadd.
    • Shad and Heidi Crowe
    • "
    • Layne is a Strong & Beautiful Baby !! He will beat this.
    • Chris Simonetti
    • "
    • Love you Linsey, Tadd & Layne!
    • Robin
    • "
    • Tad, Linsey, & Layne, We hope you reach your goal!!!!!
    • Scott & Jennifer Friers
    • "
    • on behalf of Upstate Spray Foam Insulation
    • Jamie C.
    • "
    • One Small Step!!
    • Anonymous
    • "
    • Wishing you and your family the very best in your fight for children with this awful disease, they will find a cure...
    • Denise & Rocky Rothwell
    • "
    • Best of Luck Linsey!!!
    • Sally Collins
    • "
    • Good luck and best wishes!!! Love, Jess and Zack
    • Jessica Carney
    • "
    • your in my heart always
    • Rose R.
    • "
    • You are in our Thoughts
    • Brunschmid Family
    • "
    • Thinking of all of you!
    • Greg, Kim And Kayla Jweid
    • "
    • Thinking of you :)
    • Renee Fox
    • "
    • Stay strong and happy...
    • pattie roberts
    • "
    • Linsey, I was a childhood friend of Jeff Funk and he posted this and I wanted to do what little I could. I am so sorry that you are having to go through this.
    • Andrea C.
    • "
    • I'm thinking of you both girl and anything that you need just let me know. I'm here for you and your family no matter what!!
    • Marissa Hill
    • "
    • We love you Layne!
    • Danielle Gibbs & Jeff D'Amore
    • "
    • Positive thoughts and prayers always!
    • Friends from Alfred
    • "
    • God Bless you Layne, Linsey & Tadd
    • Janet Grizzuto (Gates Cole Associates)
    • "
    • I love you Layne, Linsey and Tadd!
    • Sue Symonds
    • "
    • I love you Linsey, Tadd, & Layne!! Thinking of you guys everyday!
    • Megan T.
    • "
    • I <3 you guys! You are doing incredible things!!!
    • Kelly Smith
    • "
    • I miss seeing you on Thursdays, Linsey!
    • Eileen R.
    • "
    • God Bless that handsome little man!!!
    • Dave & Jackie
    • "
    • Linsey & Tadd, I hope and pray that they can find a cure for your baby's problem. Tadd will know me as Alan Barker's grand mother.
    • Betty B.
    • "
    • Linsey & Tadd, I hope and pray that they can find a cure for your baby's problem. Tadd will know me as Alan Barker's grand mother.
    • Betty B.
    • "
    • Linsey & Tadd, I hope and pray that they can find a cure for your baby's problem. Tadd will know me as Alan Barker's grand mother.
    • Betty Barker
    • "
    • Love recognizes no barriers. It jumps hurdles, leaps fences, penetrates walls to arrive at its destination full of hope. Maya Angelou
    • Katherine D.
    • "
    • May God be with you and your family, Linsey.
    • Donna Purdy
    • "
    • Proud to be apart of this campaign for finding a cure for PWS !
    • Pamela Northey
    • "
    • Layne has the most wonderful parents! Love to you all.
    • Ang & Ted
    • "
    • Layne is blessed to have parents like you!
    • cherie Huey
    • "
    • donation from our sons Lain and Levi
    • Kerri & Mac Mikalunas
    • "
    • We pray for all you all the time!
    • Anonymous
    • "
    • Linsey, mothers, we change the world we live in. Your advocacy for sustainable research and for your son is inspiring. All the best to you and beautiful Layne
    • Anonymous
    • "
    • thoughts and prayers are with you, layne and your family.
    • Sierra Harmon
    • "
    • My heart goes out to you!
    • Bobbi Jo K.
    • "
    • Hope this helps spread the word!
    • Anonymous
    • "
    • I wish all the best to you and your family!
    • Bridget Babich-Dadds
    • "
    • Wishing you and your family the best!
    • Chelsea Callan
    • "
    • Good luck with everything Linsey! I'm a friend of Charline's.
    • Valerie S.
    • "
    • Prayer for Layne.
    • Delores Lawson Llewellyn
    • "
    • Wish I could do more!
    • Nicole P
    • "
    • Wish I could do more!!
    • Elizabeth Ostinett

How Are We Doing?

1st Place

$15,841 raised
264% complete towards our goal of $6,000
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thank you donors

    • Chinese Auction
    • $1,794
    • Charlene V.
    • $1,000
    • Utica-Rome Speedway Donations
    • $581
    • Steve & Yvonne Ludlow
    • $500
    • Tom & Bobbie Grover
    • $500
    • Thomas, Kathy, Patrick, $ Brittany Kotary
    • $500
    • Eugene Cole
    • $500
    • A.C.I. Adorino Construction Inc
    • $500
    • Jennifer & JR Crowe
    • $345
    • Ed, James, and Evan Heath
    • $300
    • Anonymous
    • $300
    • Chenango County Law Enforcement Association
    • $250
    • Ed Logan
    • $250
    • Lisa Chase & Mary Jane Palmer
    • $250
    • Oneonta State Girls
    • $225
    • Rivkah and Eric Halpern
    • $200
    • Mark M.
    • $200
    • Patricia Chase-Slee
    • $200
    • Shad and Heidi Crowe
    • $200
    • Kevin C
    • $200
    • Christiana C.
    • $200
    • Jim & Renee Gibbs
    • $200
    • MaryJane Hale, Treas NYS Good Sam Organization
    • $200
    • Anonymous
    • $150
    • Anonymous
    • $150
    • Brewerton Speedway
    • $113
    • Chris Simonetti
    • $100
    • Dwayne jmes
    • $100
    • Mike and Karlie Barone
    • $100
    • G.M. Crisalli & Associates Inc. (Gary Crisalli)
    • $100
    • Anonymous
    • $100
    • Robin
    • $100
    • Scott & Jennifer Friers
    • $100
    • Ed Beverly
    • $100
    • The Lenard Family
    • $100
    • Tamara Peck
    • $100
    • Jamie C.
    • $100
    • Anonymous
    • $100
    • Denise & Rocky Rothwell
    • $100
    • Gates-Cole Associates Inc
    • $100
    • Christine & Nick Pastorelli
    • $100
    • James Kitchen
    • $100
    • William & Natalie Cole
    • $100
    • HMI Metal Powders Pratt & Whitney
    • $100
    • Carl & Marilou Loomis
    • $100
    • Garth Tonkin
    • $100
    • Lisa Tower
    • $90
    • Chelsea Ramsey
    • $80
    • Anonymous
    • $75
    • Jolee & Tim Hodge
    • $75
    • Karen Kahler
    • $60
    • Sally Collins
    • $60
    • Jessica Carney
    • $53
    • Rose R.
    • $50
    • Rose R.
    • $50
    • Brunschmid Family
    • $50
    • Jessica J.
    • $50
    • Greg, Kim And Kayla Jweid
    • $50
    • Renee Fox
    • $50
    • Anonymous
    • $50
    • pattie roberts
    • $50
    • Anonymous
    • $50
    • Michael Latour
    • $50
    • Andrea C.
    • $50
    • Marissa Hill
    • $50
    • Branjen Realty Holdings, LLC
    • $50
    • Sun Chevrolet, Inc.
    • $50
    • Trevisani and Laporte LLC
    • $50
    • The Parker Family
    • $50
    • Danielle Gibbs & Jeff D'Amore
    • $50
    • Anonymous
    • $50
    • Friends from Alfred
    • $50
    • Kelly P.
    • $50
    • Anonymous
    • $50
    • Janet Grizzuto (Gates Cole Associates)
    • $50
    • Scott, Brenda & Bethani Bowling
    • $50
    • Sue Symonds
    • $50
    • Ben Carmon
    • $50
    • Bridgette Purdy
    • $50
    • Michael & Laura Bader
    • $50
    • Wicks-Staley Auxiliary Unit #231
    • $50
    • Nick Jones
    • $50
    • Pamela Lepcio
    • $50
    • Megan T.
    • $40
    • Amanda Cooley
    • $40
    • Lisa Morris
    • $40
    • Jen, Brian, & Alex White
    • $40
    • Brett Hamilton
    • $40
    • Anonymous
    • $30
    • Kelly Smith
    • $30
    • Eileen R.
    • $30
    • Anonymous
    • $30
    • Anonymous
    • $30
    • Jamie T
    • $30
    • Jennifer L.
    • $30
    • Will Walters
    • $30
    • Scott Friers
    • $30
    • Dave & Jackie
    • $25
    • Betty B.
    • $25
    • Betty B.
    • $25
    • Betty Barker
    • $25
    • Katherine D.
    • $25
    • Kate & Matt
    • $25
    • Jamie T.
    • $25
    • Josh B.
    • $25
    • Donna Purdy
    • $25
    • Pamela Northey
    • $25
    • Cheney C.
    • $25
    • Ang & Ted
    • $25
    • cherie Huey
    • $25
    • Kerri & Mac Mikalunas
    • $25
    • Gina
    • $25
    • Becky Natoli Withiam
    • $25
    • Barry McArdle
    • $25
    • Deb O'Neil
    • $25
    • Anonymous
    • $25
    • Patti Harrigan-Peck
    • $25
    • Cheney C.
    • $25
    • Susan Cornnell
    • $25
    • Anonymous
    • $25
    • Lorie and Austin
    • $25
    • Wendy Gillette
    • $25
    • Progressive Dental of Norwich PLLC
    • $25
    • Carol Shineman
    • $25
    • Pulver Roofing Co. Inc
    • $25
    • Lourdes & Vincent Fumarola
    • $25
    • Lucas & Bridget Jones
    • $25
    • John & Dianne DelMedico
    • $25
    • Jennifer Neff & Family
    • $25
    • Sierra Harmon
    • $20
    • Bobbi Jo K.
    • $20
    • Megan O'Donnell
    • $20
    • Anonymous
    • $20
    • Bridget Babich-Dadds
    • $20
    • Shannon M.
    • $20
    • Lindsey G
    • $20
    • Anonymous
    • $20
    • Lisa T
    • $20
    • Anonymous
    • $20
    • Wendy Seifried & Karen Anderson
    • $20
    • Bob Salmon
    • $20
    • Skillin's Jewelers
    • $20
    • Ursula Sherman
    • $20
    • Joyce & Craig Devereese
    • $20
    • Frederick & Deanna Campione
    • $20
    • Alicia Johnson
    • $20
    • Mary Pulver
    • $20
    • Patricia & Steven Laux
    • $20
    • Allyson Smalt
    • $20
    • Suzy Jones
    • $20
    • Chad Walters
    • $20
    • Tom & Roxann Cullen
    • $20
    • Matt Sheppard
    • $20
    • Pam Parks
    • $20
    • Laurie & Jeff Strunk
    • $20
    • Nick Rochinski
    • $20
    • Greg Morgan
    • $20
    • Gregg Sullivan
    • $20
    • Devin Camenga
    • $20
    • Ashley Partridge & Glenn Forward
    • $20
    • Chelsea Callan
    • $15
    • Caryn Foote
    • $15
    • Valerie S.
    • $10
    • Delores Lawson Llewellyn
    • $10
    • Nicole P
    • $10
    • Kristin Fairbrother
    • $10
    • Kimberlee Olin
    • $10
    • Frank Caramadre
    • $10
    • Robert BuBlack
    • $10
    • Big Rick
    • $10
    • Tiffany Riker
    • $10
    • Amber Kotary
    • $10
    • Luther's Excavating
    • $10
    • Becky Hillis
    • $5
    • Elizabeth Ostinett
    • $5

Take One SMALL Step for Layne