On September 14, 2009 my world changed forever. My son Blaise was diagnosed with Prader Willi Syndrome. Our lives would never be the same. In 3 years since he was diagnosed he has come such a long way, but there is still so far to go. I am committed with every part of my soul to help eliminate the challenges of Prader Willi Syndrome for Blaise. The best way I know how to do this is by raising money for research. Researc will help bring a cure for not just the hunger, but countless other symptoms that Blaise faces everyday. Please help support an amazing cause. Please come and join me for our walk to support and raise awareness for Prader Willi Syndrome.
Even if you can not attend please consider making a donation in Blaise's honor. Every dollar counts towards a better and more fulfilling life for my amazing angel and all the other angels with PWS.
All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join me and donate now!