When our beautiful daughter, Rachel was born, she stayed in the hospital for 10 days. She was not eating well on her own, she had weak muscles and a heart problem. After months of testing, Rachel was diagnosed with Prader-Willi Syndrome. What does this mean? Rachel will have lifelong challenges, which include developmental delays and insatiable hunger. Nothing will come easy for her. Since the diagnosis we have started growth hormone to increase her muscle mass as well as continuous physical therapy and speech therapy, but it doesn't end there.
We need your help!
On August 5th we will be hosting the 3rd annual Montreal 'One Small Step' Walk-a-thon. All funds raised will go to the Foundation for Prader-Willi Research Canada to help fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA.
Tax Receipts will be issued for donations greater than $25. Please sponser us by clicking on the 'donate now' button. If you already have we thank you from the bottom of our hearts!
Learn more about PWS and this event at http://www.fpwr.org/.