Thank you for visiting Olivia's campaign page. I am helping to raise money for the Foundation for Prader-Willi Research. Prader-Willi Syndrome is a randomly occurring, genetic abnormality of the 15th chromosome that effects approximately 1 out of every 12,000-15,000 births. The most common characteristics of PWS are physical, speech and cognitive delays and a constant, insatiable hunger. Our 3 year old daughter Olivia was diagnosed with PWS at 2 weeks old. She laid motionless for 5 weeks at Children's Hospital until we were finally able to bring her home. At that time she was unable to move or eat on her own and didn't even have the strength to open her eyes. With the support of her team of doctors, therapists, family and friends she has come a long way. However, there is no cure for PWS and she still faces many challenges everyday such as nightly growth hormone injections, frequent doctor visits, physical therapy, occupational therapy, therapeutic riding, aquatic therapy and speech therapy. Despite these challenges there is hope.
Organizations like the Foundation for Prader-Willi Research and PWSAUSA are funding research to enhance the quality of life for all of those who are affected by Prader-Willi Syndrome. They have already made progress but they need your help. Please, register today at http://onesmallstep.fpwr.org/dw/walking and come out and join us for a beautiful day at the park. Together we can raise money and spread awareness for this complex genetic disorder.
Click the Donate Now button and help fund research for a cure. Thank you for making the first step and listening to my story...
All proceeds from the One SMALL Step walks go to fund the Foundation for Prader-Willi Syndrome Research.