It is hard to believe that a year has passed . Our amazing little girl is becoming an active, curious and determined little toddler. With the help of all of her family and friends and her amazing support of doctors and specialist she is overcoming the many obstacles of PWS, but with many more difficult ones to come the most being having our daughter always hungry. Imagine being at your hungriest but with a body that has a much slower metabolism and requires a strict low calorie and highly monitored diet. That is what our daughter will struggle with as well as other challenges for the rest of her life We were overwhelmed with the support from family and friends last year and far surpassed what we expected. We look forward to raising the funds for the much needed research but to also raise the awareness of PWS. We understand that times are tight but every donation goes to something much greater...... Maybe oneday a cure for our children and families living with PWS
Samantha and her Team
.All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join us and donate now!