One SMALL Step, Sauquoit, NY Page
It is that time of year again... Time for Tadd & I to ask you for your hard-earned money, your time, your energy, your love, and your support. And why do we do this? Because we simply have no choice.
Our son Layne is starving. He isn't starving because we are poor or because we do not feed him. He is starving because he has a rare genetic disorder called Prader-Willi Sydrome (PWS). PWS causes Layne to feel like he is starving every second of every minute of every hour of every single day. Even after he eats! This feeling overwhelmingly consumes him. It consumes his every thought, every action, and every move.
Many people with Prader-Willi Syndrome have the potential to be a part of society, to hold a job, and to live on their own. Unfortunately this feeling of starvation is so overwhelming they are unable to do so.
Picture yourself doing this.... You walk into your kitchen absolutely starving and grabbing something to eat is all you can think about. You open the refrigerator, grab a sandwich, and start devouring it. Within a few bites you start to take a few deep breaths because your belly is starting to feel full. You finish the sandwich, and you feel completely stuffed! BUT just imagine if this were to happen... Once you start eating that fullness never kicks in. You eat and you eat and you eat and you are STILL STARVING. So what does your mind tell you to do? KEEP EATING! This is how children and adults with Prader-Willi Syndrome feel all the time. They simply cannot be left alone because they WILL eat themselves to DEATH.
Food is our source of LIFE. Food to a person with PWS is an ENEMY.
We will be hosting our 2nd One Small Step Walk in Sauquoit, NY. We are asking you to walk with us and to consider donating to the Foundation for Prader-Willi Research in honor of our son Layne Michael Parks. Every penny that is raised goes towards research for finding a cure for this awful hunger.
We are accepting donations, gifts for auction, gifts for raffles, gift certificates... anything to help raise money! Please contact Linsey or Tadd (607-316-5120/Linsey.Grover@gmail.com – Call, text, or email) for any questions!
Thank you all for your continued support & for being part of Layne's Gang!
Linsey & Tadd
**Please be sure to check out our video at https://www.youtube.com/watch?v=qMXacMP6lfY