Melissa, Andrew, Kemett and Mabel Demand
Hi, my name is Kemett. I have something called Prader-Willi Syndrome (PWS). PWS is a rare genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. People that live with PWS suffer from a wide range of symptoms, but the most notable symptom is an insatiable hunger (hyperphagia). Individuals with PWS can never feel full, even after they've eaten a full meal. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.
I was born on August 25, 2013. I was very quiet, had trouble sucking on a bottle and was “floppy”. With many of interventions, hard work, and lots of love, I have come a long way. I can eat all of my food, started solids at 6 months, and am getting stronger everyday! If I continue to work hard, it's likely that I will have a pretty great future, graduate high school, and maybe even college with my peers! However, no matter how hard I work or how well I do, I may never be able to live independently because of the hyperphagia.
My family would love for you to join us in fundraising for research in hopes of one day finding a cure! Please consider setting up your own personal fundraising page, donating to me and/or virtually walking/running on September 30!
Thank you for visiting my personal campaign page! I am helping to raise money for the Foundation for Prader-Willi Research.