Take One Small Step With

Pledge for Paxton

2017
$18,871 of $15,000 Raised
Return to Omaha, NE 2017

About

Pledge for Paxton

Thank you for visiting my page!.
Our son Paxton was diagnosed in the NICU at 2 weeks old with Prader-Willi syndrome (PWS). He is the sweetest most determined baby and we want to do whatever we can to help him LIVE LIFE FULL. Our dream is for there to be a CURE and/or medication to help eliminate the hyperphagia phase before Paxton enters that stage of the disorder. We want Paxton to live a full life, not just in his belly, but all aspects of his life. That is why we fundraise....Paxton's future depends on the important research FPWR is doing.
 
WHAT IS PRADER-WILLI SYNDROME?

 Prader-Willi Syndrome (PWS) is a complex, genetic disorder resulting from abnormalities occurring on the 15th chromosome. Symptoms include severe hypotonia (low muscle tone), cognitive and physical delays among others. The hallmark symptom is Hyperphagia, a painful, constant, chronic hunger. PWS tricks the brain into thinking the body is starving ALL THE TIME.  This coupled with a very slow metabolism can lead to many health related complications. To date, there is no cure for PWS and no treatment for the associated Hyperphagia.  
 
WHAT IS FPWR?
 
The Foundation for Prader-Willi Research is an organization dedicated to eliminating the challenges of Prader-Willi Syndrome through research. FPWR is advancing research toward understanding and treating Prader-Willi syndrome, with the goal of an eventual cure. 100% of the money raised goes directly to support research. To learn more about FPWR and the research that is underway, please visit their website https://www.fpwr.org/.
Please join me and donate now!
 
UPCOMING EVENTS
One Small Step Walk
When: September 9, 2017
            Registration is from 9am-10am 
            The Walk starts at 10am.
Strollers, wheelchairs, etc are all welcome. 
Where: Waterford Lake
14807 Starlite Circle
Bennington, NE 68007
 

messages from the donors

    • "
    • This donation is in honor of Paxton on behalf of Dennis & Julie , Dean & Virginia, Chuck & Becky, Tom & Halley, Jan & John
    • The French, Kalasek, Morgan, and Chapman Families
    • "
    • We pray for a great turnout and that you exceed your goal!! May these small steps end in a cure. Praise God for tireless effort for these precious children.
    • Molly Reed
    • "
    • Go, fight, win!!! Paxton, you are an MVP! So are your parents!!!
    • Scott and paula H.
    • "
    • Praying for Paxton and successful research
    • Ron, Pat, and Deb
    • "
    • Power to Paxton!!! ❤️
    • Ames Family
    • "
    • We love you, sweet Paxton!!
    • Kati and Preston Parsons
    • "
    • My prayers are with you all
    • Aunt Deb
    • "
    • Love you so so much
    • Chinyere O.
    • "
    • With love and support ❤️
    • Shelly
    • "
    • Paxton, we are honored to help raise money for you and PWS.
    • Mike, Kelli & Grace Evans
    • "
    • We love you Paxton!
    • John & Karen Friend
    • "
    • Love you Paxton and Kalasek Family!
    • Trayci and Sean T
    • "
    • We love you, Pax! You're an all-star, lil' man!
    • Kim & Zach Sherwin
    • "
    • To our favorite NICU bff. You are beyond perfect and so loved ❤❤❤
    • Elliott
    • "
    • We are happy to support Paxton & the Kalasek family.
    • Leigh & Brett Lindstrom
    • "
    • Lots of love to Paxton and his family!
    • Jill and Chris Pomeroy
    • "
    • Our prayers accompany our pledge - God Bless!
    • The Laferla Family
    • "
    • Pulling for Paxton in honor of his grand-parents 40th wedding anniversary. Congrats Beck & Chuck. Prayers to Pax and his family. We love you!
    • Bob & Kelly
    • "
    • Paxton, we are rooting for you! You have the best mom and dad who are so brave!
    • Gail, Shane, John & Ella Graeve
    • "
    • We are excited to help support Paxton at the walk.
    • The Van Voltenberg Family
    • "
    • Your an amazing family!!
    • Rice Family
    • "
    • Go Team Paxton! #boymoms
    • Tibke family
    • "
    • We will support you always and forever !
    • Mary
    • "
    • Best Wishes
    • Rick & Barb Gremm
    • "
    • We love our cousin Paxton!!!
    • Grayson and Mila
    • "
    • Love your family.
    • Anonymous
    • "
    • For Sweet Baby Boy Paxton!!
    • Tara Wilson
    • "
    • Miracles happen everyday! Blessings and love, Scott & Tori Fehringer
    • Scott & Tori Fehringer
    • "
    • Praying for Paxton
    • Tom & Tami Cave
    • "
    • Praying for Paxton and medical breakthroughs for this disease.
    • Toby & Anne Tobin
    • "
    • Live by faith not by fear
    • The Burke Family
    • "
    • Go Paxton!
    • Tony and Laura
    • "
    • God Bless Baby Paxton!
    • Kelly R.
    • "
    • ...because research matters
    • Jean Koerten
    • "
    • What an adorable and lucky little guy to have you as his parents! Your strength is admirable... God is so good! Go Paxton, we'll be cheering you on!
    • Eric & Marcy Fischer
    • "
    • To my little friend
    • Zach
    • "
    • Just a small donation to help your cause for little Paxton. God Bless Him!
    • Dick and Pam Bennett
    • "
    • Praying for a cure. You guys are amazing parents.
    • Diane Peters
    • "
    • We love you Paxton!
    • Susan, Christian, & Caden Caniglia
    • "
    • So much love to you, Pax! You are a superhero!
    • Pledge for Paxton
    • "
    • Our thoughts and prayers are always with you on this journey.
    • Nelson Family
    • "
    • I’m praying for Paxton every night.
    • Janet Hoffman
    • "
    • Love you Paxton and family!
    • Natasha and Judd R.
    • "
    • We love you sweet Paxton!
    • Brian Blacks
    • "
    • Paxton was blessed when he chose you and your husband to be his parents
    • Lisa C
    • "
    • Love for Paxton & his family!
    • Robert B.
    • "
    • Hope to see you at swimming lessons this fall :)
    • Talan Mann
    • "
    • To a fantastic, healthy & strong future for Paxton!
    • Christy Bieker
    • "
    • Will keep in prayers for cure
    • Cindy & Bill Sarraillob
    • "
    • Rooting for Paxton! We love you guys!!!
    • Jennifer and Erik Brook
    • "
    • Prayers for Paxton
    • Anonymous
    • "
    • I am a friend of your Grandma Julie--she is so proud of you
    • Anonymous
    • "
    • Stay positive and strong
    • Rob and Shelley Ness
    • "
    • Great cause! This small token is in honor of the French and Grigorov family!
    • Mandy Ferrel
    • "
    • For your precious boy
    • Lorraine Boyd
    • "
    • From my little super hero to yours!
    • Brady Hysell (and his mom)

How Are We Doing?

1st Place

$18,871 raised
125% complete towards our goal of $15,000
Don't want to donate online? Fill out our form and mail in your donation. Download Now

thank you donors

    • Kauffman Foundation Matching Gifts Program
    • $4,400
    • The French, Kalasek, Morgan, and Chapman Families
    • $2,200
    • Anonymous
    • $771
    • Kauffman Foundation Matching Donation
    • $600
    • John Heart Carol M.
    • $500
    • Dan & Chansey Pullen
    • $250
    • Lois Zulauf
    • $250
    • Kate and Faruk
    • $250
    • American Specialty Insurance & Risk Services, Inc.
    • $250
    • Anonymous
    • $250
    • Anonymous
    • $250
    • Susan H.
    • $200
    • Molly Reed
    • $200
    • Anonymous
    • $200
    • Scott and paula H.
    • $200
    • Anonymous
    • $190
    • Baylor & Brynlee Kalasek
    • $187
    • UNO Health Services & CAPS U.
    • $163
    • Uncle Bob and Aunt Kelly
    • $150
    • Ron, Pat, and Deb
    • $150
    • Ames Family
    • $150
    • Kati and Preston Parsons
    • $150
    • Anonymous
    • $150
    • Drew & Kate Derrico
    • $100
    • Aunt Deb
    • $100
    • Chinyere O.
    • $100
    • Shelly
    • $100
    • Mike, Kelli & Grace Evans
    • $100
    • John & Karen Friend
    • $100
    • Trayci and Sean T
    • $100
    • Dave & Linda Steube
    • $100
    • Kim & Zach Sherwin
    • $100
    • Nick Schittone
    • $100
    • Andy and Jenny Kleiber
    • $100
    • Elliott
    • $100
    • Leigh & Brett Lindstrom
    • $100
    • Jill and Chris Pomeroy
    • $100
    • Pfeffer Family
    • $100
    • The Laferla Family
    • $100
    • Bob & Kelly
    • $100
    • Gail, Shane, John & Ella Graeve
    • $100
    • Jack French, Jr.
    • $100
    • Scott and Jennifer S.
    • $100
    • The Van Voltenberg Family
    • $100
    • Rice Family
    • $100
    • Tibke family
    • $100
    • Mary
    • $100
    • Tom & Cathy Lenihan
    • $100
    • Rick & Barb Gremm
    • $100
    • Jaime Wyant Family Fund
    • $100
    • Jim and Nancy Kohler
    • $100
    • Colleen Leahy
    • $100
    • Kelly Ethier
    • $100
    • Dan & Allison Buckley
    • $100
    • Brandon & Courtney S.
    • $100
    • Anonymous
    • $100
    • Anonymous
    • $100
    • Grayson and Mila
    • $100
    • Michael Ancona
    • $100
    • Anonymous
    • $75
    • Anonymous
    • $50
    • Bridget G.
    • $50
    • Anonymous
    • $50
    • Ann A.
    • $50
    • Katey and McClain
    • $50
    • Tara Wilson
    • $50
    • Scott & Tori Fehringer
    • $50
    • Tom & Tami Cave
    • $50
    • John W.
    • $50
    • Anonymous
    • $50
    • Toby & Anne Tobin
    • $50
    • The Burke Family
    • $50
    • Clint, Jessica, and Cora Cox
    • $50
    • Melanie O.
    • $50
    • Jo and Larry Burson
    • $50
    • Anonymous
    • $50
    • Logan Arndt
    • $50
    • The Burkes
    • $50
    • Tony and Laura
    • $50
    • Kelly R.
    • $50
    • Adam and Laurel Gremm
    • $50
    • Jason, Mina, Jaxin, Caelyn and Kyan French
    • $50
    • Jean Koerten
    • $50
    • Anne D.
    • $50
    • Townsend Crew
    • $50
    • Eric & Marcy Fischer
    • $50
    • Janice B.
    • $50
    • Yeshnowski family
    • $50
    • Zach
    • $50
    • Dick and Pam Bennett
    • $50
    • Diane Peters
    • $50
    • Anonymous
    • $50
    • Ryan and Jodi Johnson
    • $50
    • Susan, Christian, & Caden Caniglia
    • $50
    • Pledge for Paxton
    • $50
    • Anonymous
    • $50
    • Debbie and Donald Schroeder
    • $50
    • Nelson Family
    • $50
    • Diane Oster
    • $50
    • Dennis and Candace Klingemann
    • $50
    • Anonymous
    • $50
    • Anonymous
    • $50
    • Anonymous
    • $50
    • Janet Hoffman
    • $50
    • Jana U.
    • $40
    • Lucy
    • $40
    • Anonymous
    • $40
    • Anonymous
    • $40
    • Gloria McDaniel
    • $30
    • Natasha and Judd R.
    • $30
    • Brian Blacks
    • $30
    • Renada S.
    • $30
    • Margaret Nielsen
    • $30
    • Lisa C
    • $25
    • Robert B.
    • $25
    • Megan Flory
    • $25
    • Anonymous
    • $25
    • Anonymous
    • $25
    • Scott and Mary Beth G.
    • $25
    • Cooper Harvey B
    • $25
    • Talan Mann
    • $25
    • Christy Bieker
    • $25
    • Cindy & Bill Sarraillob
    • $25
    • Linda Benham
    • $25
    • The Hayworth Family
    • $25
    • Jennifer and Erik Brook
    • $25
    • Anonymous
    • $25
    • Anonymous
    • $25
    • Anonymous
    • $25
    • Anonymous
    • $25
    • Creighton Pediatric Therapy
    • $25
    • Rob and Shelley Ness
    • $25
    • Mandy Ferrel
    • $20
    • Lorraine Boyd
    • $20
    • Brady Hysell (and his mom)
    • $20
    • Kathy W.
    • $20
    • Jenny C.
    • $20
    • Anonymous
    • $20
    • Terri P.
    • $20
    • Anonymous
    • $10

Pledge for Paxton