Take One Small Step With

One SMALL Step, Running for Lillian Page

2017
$9,471 of $10,000 Raised
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About

One SMALL Step, Running for Lillian Page

When we received Lillian's diagnosis at 6 weeks old, we instantly knew we would do anything in our power to give her a bright future full of opportunities, happiness, and good health.  We immediately started researching PWS and communicating with other parents to see what we could do to make our dreams for her a reality.  The more we read about FPWR and the research they do, the more we wanted to support them.  FPWR isn't just an organization, it's a community of parents, family members, friends, and doctors who are committed to finding a way to curb our children's appetite so they can live FULL lives. 
Why run a half marathon?  I'm not a runner.  I've never enjoyed running.  But I want to set an example for my daughter by developing healthy habits through exercise and eating right.  When I reach the point in running when I feel like I can't possibly keep going, I'm reminded of my daughter.  I'm reminded of the countless times she was in therapy learning to lift her head. Learning to lift her arms.  Learning to use her hands.  Learning to stand.  Learning to walk.  I'm reminded of the words of encouragement we would enthusiastically cheer, telling her "You can do it!"  "Just one more step!"  "You're almost there!"  "Good job!" "I'm so proud of you!"
I imagine if she could speak, she would be saying the same thing to me.  So I take one more step.  One small step.  And then another, and another.  I can't imagine ever stopping, or ever giving up. 
 

 
All proceeds from the One SMALL Step walks and Running for Lillian go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/. Please join me and donate now!

messages from the donors

    • "
    • for all the shirts purchased!
    • RFL T SHIRT ORDER
    • "
    • Hoping for a cure for my beautiful granddaughter Lillian
    • Nana
    • "
    • Loving Lily ... praying for a cure!
    • Nana
    • "
    • Good luck!
    • Steve and Kathy Headley
    • "
    • In honor of Grandma Nancy
    • CarDon and Associates
    • "
    • I love my niece!
    • Aunt Rachel
    • "
    • LOVE AND PRAYERS FROM JIM AND SANDI
    • JIM AND SANDI FRANCIS
    • "
    • Items #8 and #11
    • The McCarty Family
    • "
    • Go Sare Go!
    • Caren VG
    • "
    • Praying for a cure!
    • Troy and Dana
    • "
    • Action #39 and #3
    • Bjandkris
    • "
    • You guys are amazing parents. Lillian is a lucky girl!
    • The Hodsons
    • "
    • Praying for a cure
    • Lyons Health & Living Center
    • "
    • auction items #7 & #13
    • Kelly Rodriguez
    • "
    • Auction item: 70, 29, 24
    • Brooke M.
    • "
    • So proud of you!
    • Suzannah and Karl Kellner
    • "
    • We support Aunt Sarah!
    • Josie and Mason M.
    • "
    • Hope you can support my avon walk!
    • Kellners
    • "
    • We are all rooting for you, Lillian!
    • Barbara Barnett
    • "
    • Auction item #73
    • William Dodd
    • "
    • Hi Sarah, this is for auction numbers 46 and 67, plus a little extra.
    • Anonymous
    • "
    • #25 and # 55
    • candi haley
    • "
    • Good luck! We love Lillian!
    • Susan
    • "
    • You are in our prayers
    • Robert and Diane W.
    • "
    • Auction #36 Sami's doll Lucinda
    • Katina H.
    • "
    • #15 #16 #31 #44
    • Woltjer's
    • "
    • With much love, auction Items 14 & 38
    • Lindsey Kay
    • "
    • #49
    • Zoe T.
    • "
    • Auction #71, 72, and 82! Thank you for helping Leah :)
    • Jen Bender
    • "
    • Praying for a cure!
    • Etta W
    • "
    • Item #27 the art set!
    • Caren VG
    • "
    • Auction #81 and #83
    • Sara S.
    • "
    • You are an amazing woman with a beautiful family! So proud to know you.
    • Preston & Melissa Larimer
    • "
    • Good luck Sarah!
    • Kara Franklin
    • "
    • Because Aunt Susan cares.
    • Anonymous
    • "
    • Happy to help. You guys rock!
    • Trish Kerle (and Beth Applegate)
    • "
    • #18
    • Kasie M.
    • "
    • This is for auction items #45 and #53 :)
    • Tara K.
    • "
    • #54, #69
    • The Hammond Family
    • "
    • Auction item #21
    • Anonymous
    • "
    • Love to you all! Have a great run and we continue to hope and pray for a cure!
    • Andrea, Jim, Emily and David Choate
    • "
    • #68 Love little Lillian - our granddaughter, Marcelle (who is on my lap in the photo) is the same age; her mom let us know about Lillian. May God bless you all.
    • Anne Rosiak
    • "
    • wine n canvas auction item
    • Anonymous
    • "
    • Item #30 and item #59
    • Mindy R.
    • "
    • Auction item #6
    • Anonymous
    • "
    • Auction #42 (football hat)
    • Dana Tinsley
    • "
    • Auction item #48 - Best of luck and happy birthday Lillian!!
    • Tanya Kennedy
    • "
    • item #52
    • Michele A.
    • "
    • Auction item #80
    • Jennifer R.
    • "
    • We love you Lillian! Auction item #33
    • Drew & Kate Lamont
    • "
    • #56 and #57
    • Melissa O.
    • "
    • #1 & #77
    • Kellie C.
    • "
    • #19 - Children's Museum Passes
    • Melissa M.
    • "
    • #50 We love you Lillian!
    • Anonymous
    • "
    • # 41 - Pick a Pumkin
    • Karen Murphy
    • "
    • #4 Scentsy
    • Jenny S.
    • "
    • You rock Sarah!
    • Cathy D.
    • "
    • So excited to have won my RFL auction item!
    • Vanessa
    • "
    • FB Auction Item #5
    • Braderstorf
    • "
    • Auction #50 (baby blanket)
    • Dana Tinsley
    • "
    • Wishing for a cure!
    • Anonymous
    • "
    • #47 – Baby Girl Sushi Gift Set
    • Anonymous
    • "
    • FB Auction - baseball hat :)
    • Lina M G Martin
    • "
    • item #26
    • Pam B.
    • "
    • Auction #16 (oatmeal soap)
    • Dana Tinsley
    • "
    • Item 31 (the cape!)
    • Katie H.
    • "
    • #79
    • Anonymous
    • "
    • You are Amazing Sarah!!!! <3 Lilly, so are you:)))
    • the Robinson's
    • "
    • #64 cell phone skin in auction
    • Anonymous
    • "
    • I know it isn't much...
    • Jody Brown
    • "
    • Item #75
    • Lindsay B.
    • "
    • Build A Bear Gift Certificate.
    • Sara H.
    • "
    • Praying you meet your goals, and a 'cure' is found very, very soon.
    • Cathy K.
    • "
    • Auction item #66
    • Anonymous

How Are We Doing?

1st Place

$9,471 raised
95% complete towards our goal of $10,000
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thank you donors

    • RFL T SHIRT ORDER
    • $1,215
    • Nana
    • $500
    • Nana
    • $500
    • Steve and Kathy Headley
    • $500
    • CarDon and Associates
    • $500
    • Aunt Rachel
    • $300
    • Anonymous
    • $250
    • JIM AND SANDI FRANCIS
    • $250
    • Mindy S.
    • $200
    • Emerson, Laura, and Joel Pontius
    • $200
    • The McCarty Family
    • $180
    • Caren VG
    • $150
    • Scott and Cindy Newland
    • $150
    • Troy and Dana
    • $150
    • Bjandkris
    • $150
    • The Hodsons
    • $150
    • Lyons Health & Living Center
    • $120
    • Kelly Rodriguez
    • $115
    • Brooke M.
    • $102
    • Suzannah and Karl Kellner
    • $100
    • Josie and Mason M.
    • $100
    • Micah & Anna
    • $100
    • Kellners
    • $100
    • Patti Landgraf
    • $100
    • Melissa L.
    • $100
    • Barbara Barnett
    • $100
    • William Dodd
    • $100
    • Anonymous
    • $100
    • Anonymous
    • $100
    • candi haley
    • $100
    • Susan
    • $100
    • Lawrence S.
    • $100
    • Robert and Diane W.
    • $100
    • Katina H.
    • $80
    • Woltjer's
    • $80
    • Sherry Holliday
    • $75
    • Lindsey Kay
    • $75
    • Zoe T.
    • $70
    • Jen Bender
    • $60
    • Etta W
    • $60
    • Caren VG
    • $55
    • Sara S.
    • $55
    • Preston & Melissa Larimer
    • $50
    • Kara Franklin
    • $50
    • Anonymous
    • $50
    • Anonymous
    • $50
    • Trish Kerle (and Beth Applegate)
    • $50
    • Kasie M.
    • $50
    • Tara K.
    • $50
    • The Hammond Family
    • $50
    • Anonymous
    • $50
    • Andrea, Jim, Emily and David Choate
    • $50
    • Anne Rosiak
    • $50
    • Stephanie M.
    • $50
    • Anonymous
    • $50
    • Anonymous
    • $50
    • Caren VG
    • $50
    • Tanya J.
    • $50
    • Mindy R.
    • $49
    • Anonymous
    • $46
    • Dana Tinsley
    • $43
    • Tanya Kennedy
    • $42
    • Michele A.
    • $40
    • Jennifer R.
    • $40
    • Beth Long
    • $37
    • Drew & Kate Lamont
    • $30
    • Melissa O.
    • $30
    • Kellie C.
    • $29
    • Melissa M.
    • $27
    • Anonymous
    • $25
    • Sydney L.
    • $25
    • Anonymous
    • $25
    • Karen Murphy
    • $25
    • Jenny S.
    • $25
    • Dianne B.
    • $25
    • Michele S.
    • $25
    • Anonymous
    • $25
    • Cathy D.
    • $25
    • Elyse W.
    • $25
    • Nancy L.
    • $22
    • Vanessa
    • $22
    • Anonymous
    • $20
    • Braderstorf
    • $20
    • Dana Tinsley
    • $20
    • Anonymous
    • $20
    • Anonymous
    • $20
    • Anonymous
    • $18
    • Lina M G Martin
    • $17
    • Pam B.
    • $16
    • Dana Tinsley
    • $15
    • Katie H.
    • $15
    • Anonymous
    • $15
    • the Robinson's
    • $15
    • Anonymous
    • $10
    • Anonymous
    • $10
    • Jody Brown
    • $10
    • Kelley T.
    • $8
    • Lindsay B.
    • $8
    • Sara H.
    • $8
    • Cathy K.
    • $5
    • Anonymous
    • $2

One SMALL Step, Running for Lillian Page