Take One Small Step With

Going to Great Lengths for Eva - Ronda Jensen, JayDee Lindeen, Mara Beard and Tara Christman

2017
$16,449 of $20,000 Raised
Return to 2017 TCS NYC Marathon- Team FPWR 2017

About

Going to Great Lengths for Eva - Ronda Jensen, JayDee Lindeen, Mara Beard and Tara Christman

Thank you for visiting our page! We are excited to have you join us on our journey to promote awareness and raise desperately needed funds for the Foundation for Prader-Willi Research (FPWR). This year, FPWR has been awarded 15 runner’s bibs for the NYC marathon. The process for obtaining these bibs is very competitive and they are highly sought after in the racing world. FPWR held a lottery for the bibs open to anyone willing to raise $5,000 each for PWS research. In an effort to keep our fundraising evolving and demonstrate to our donors our devotion to this cause, Team Eva Grace, entered the lottery. As luck would have it, we were awarded 4 of the bibs! All four runners, Ronda Jensen, JayDee Lindeen, Mara Beard, and Tara Christman are thrilled and honored to be representing Team FPWR in the world’s number one marathon.
 
WHO IS EVA GRACE?
 
Eva Grace is an energetic, fun-loving, four-year-old who can make anyone smile. Eva loves puzzles and books. She loves caring for her baby dolls and laughing with her siblings. Eva is also a fighter. She battles everyday with the many obstacles that come with having Prader-Willi Syndrome including a painful, unrelenting, hunger. Eva always feels as if she is starving; as if she hasn’t eaten for days. She never feels full. This insatiable appetite creates an obsession with food that makes ordinary life impossible. Eva battles every day for an ordinary life; she strives for a normal childhood.
 
WHAT IS PRADER-WILLI SYNDROME?
 
Prader-Willi Syndrome (PWS) is a complex, genetic disorder resulting from abnormalities occurring on the 15th chromosome. Symptoms include severe hypotonia (low muscle tone), intellectual and physical delays, and behavioral challenges among others. The hallmark symptom is Hyperphagia, a painful, constant, unrelenting urge to eat. This coupled with a very slow metabolism often leads to life-threatening obesity. To date, there is no cure for PWS and no treatment for the associated Hyperphagia.
 
WHAT IS FPWR?
 
The Foundation for Prader-Willi Research is an organization dedicated to eliminating the challenges of Prader-Willi Syndrome through research. FPWR is advancing research toward understanding and treating Prader-Willi syndrome, with the goal of an eventual cure. 100% of the money raised goes directly to support research. To learn more about FPWR and the research that is underway, please visit their website https://www.fpwr.org/.
 
As a team, we are committed to raise at least $20,000 for PWS research in 2017. We hope you will support our efforts with a donation today as we go to GREAT LENGTHS to ensure one day Eva will LIVE LIFE FULL.

 

messages from the donors

    • "
    • Eva is an amazing girl who will steal your heart. They deserve all the help possible!!
    • Thomas Finley
    • "
    • Great little girl, great Family, great cause!!
    • Rusty and Barb Warnick
    • "
    • Love and miss your sweet family
    • Morgan & Kristin Descant
    • "
    • In loving memory of our precious Ella Mae.
    • Uncle Merlin & Aunt Bonnie B.
    • "
    • Sweet Eva a donation in memory of your Great Grandparents. They would have been thrilled to know you miss little sunshine
    • Papa Ron & Grandma June
    • "
    • We love you Eva!!! Good luck Ronda! We are rooting for you! Love you!!
    • California Ratliffs
    • "
    • Our love to you all!
    • Anonymous
    • "
    • We love you, Eva!!!
    • Cheney Family
    • "
    • Have a great run!!
    • Kaye and Bill
    • "
    • Keep fighting Eva Grace!
    • Best Friends Animal Hospital and Urgent Care Center
    • "
    • Good luck Ladies!
    • JoJo

How Are We Doing?

1st Place

$16,449 raised
82% complete towards our goal of $20,000
Don't want to donate online? Fill out our form and mail in your donation. Download Now

thank you donors

    • Temco, Llc
    • $3,000
    • HP Community Spaghetti Dinner
    • $1,035
    • Shaver Transportation
    • $1,000
    • Billings Insulation Service, Inc.
    • $1,000
    • Linda Forcella
    • $1,000
    • Corey & Sarah Waskow
    • $1,000
    • MDU Resources Foundation (oeg)
    • $1,000
    • HP Community Umbrellas
    • $500
    • The Rob and Melani Family Foundation
    • $500
    • Mara and Aaron Beard
    • $350
    • HP Community Umbrellas
    • $334
    • Ryan & Kelly Burton
    • $300
    • Angela Lile
    • $300
    • Michael Loveridge
    • $260
    • Antonio A.
    • $250
    • Tawni Ban
    • $250
    • Thomas Finley
    • $250
    • Amber Echols
    • $209
    • HP Community U.
    • $200
    • Rusty and Barb Warnick
    • $200
    • Ark Orthopedics
    • $150
    • Jacqueline Wohlfeil
    • $150
    • Nikki Zimmer
    • $125
    • Llr Inc.
    • $105
    • Morgan & Kristin Descant
    • $100
    • Anonymous
    • $100
    • Anonymous
    • $100
    • Lynette S.
    • $100
    • Jennifer Rainey-Yates
    • $100
    • Anonymous
    • $100
    • Teamseters Union Local 190
    • $100
    • Uncle Merlin & Aunt Bonnie B.
    • $100
    • Lois Whitehead
    • $100
    • Linda and Dean
    • $100
    • Anonymous
    • $100
    • Kenneth Beard Insurance Agency
    • $100
    • Kim Lohrenz
    • $100
    • Bella Spa Body-mind-spirit
    • $100
    • Papa Ron & Grandma June
    • $100
    • Jason and Kristine Neiberger
    • $75
    • Pwh Fencing
    • $75
    • Joey Oltrogge
    • $75
    • Candace Eldred
    • $75
    • Jodi Peterson
    • $65
    • Judith and Michael Killen
    • $55
    • Samantha G.
    • $50
    • Stockman Bank
    • $50
    • William Tygart
    • $50
    • California Ratliffs
    • $50
    • Northern Broadcasting System
    • $50
    • Cheryl and Clinton Johannes
    • $50
    • Penny Beard
    • $50
    • William Tygart
    • $50
    • William Tygart
    • $50
    • William Tygart
    • $50
    • Joan Dickson
    • $50
    • Anonymous
    • $40
    • Tammy and Billy Murphy
    • $31
    • Cheney Family
    • $30
    • Project Kids Daycare And Preschool, LLC
    • $30
    • Nicole and Michael Donally
    • $30
    • Kaye and Bill
    • $30
    • Best Friends Animal Hospital and Urgent Care Center
    • $25
    • JoJo
    • $25
    • Michael & Mink Reiter
    • $25
    • Tammy and Billy Murphy
    • $25
    • Nicole and Michael Donally
    • $25
    • Pwh Fencing
    • $25
    • Susan and Jay Mack
    • $25
    • Nikki and Pat Zimmer
    • $25
    • Iona Stookey
    • $25
    • Sarah Reynolds
    • $25
    • Anonymous
    • $20
    • Jodi Peterson
    • $14
    • Mara and Aaron Beard
    • $13
    • Cecelia Pinkerton
    • $13
    • Tracy and Chad Siemion
    • $10

Going to Great Lengths for Eva - Ronda Jensen, JayDee Lindeen, Mara Beard and Tara Christman