Team Isabel's PWS Fundraising Page
Thank you for visiting our page! As many of you know,our youngest daughter Isabel was born in July 2015 with Prader-Willi syndrome (PWS) and I am taking one SMALL Step to help to raise funds for critical research to help eliminate the challenges of PWS. In other words, I am running the Disney Princess Half Marathon with my sister Christine - in princess dresses- and Jake is participating in a triathalon in April (no princess dress involved-I think) to raise funds that will help Isabel lead a healthy and happy life!
This is the first time we have reached out to our friends to ask that they donate in honor of her. We have become part of the Foundation for Prader-Willi Research and are very encouraged with the work that they are doing to find solutions to some of the life long challenges that Isabel and her friends will face. Funds raised will be used to advance PWS research through the Foundation for Prader-Willi Research, and donations are tax deductible. You can learn more about PWS and the research that is underway at http://www.fpwr.org/.
Please help Isabel and donate now! And many thanks to all of you who have been so supportive and wonderful over the past year!
With all our love,
Corinne, Jake, Caroline, Catie and Isabel Hays