Prader-Willi Syndrome is a rare genetic disorder, affecting 1 out of every 15,000 people. Being part of a small community, it is often difficult to spread awareness, and therefore raise funds. But having eager and dedicated people like you on our team ensures that although small, we are mighty, and together we will help better the lives of those living with PWS! Every dollar you raise through our One SMALL Step program goes directly to PWS related research, and continues to help us achieve our goal of eliminating the challenges of Prader-Willi Syndrome, one small step at a time.
We’re so excited that you’ve decided to take One SMALL Step with us to find treatments for Prader-Willi Syndrome. We know fundraising can be a little daunting at first, but we’re here to help you every step of the way!
Step 1: Register and Create a Fundraising Page by clicking the 'Create My Page' button below. You will be asked to set your fundraising goal and have the option of personalizing your page with a photo and personal story.
Step 2: Share your page with all your contacts through email, twitter, Facebook and other social media outlets!
Need help with your fundraising efforts? Sign in to your account to download our Fundraising Guide which will take you through each step of the fundraising process, from getting started to following up with your donors and thanking them for their support.
"As I watched everything come together at our first One SMALL Step event, I remember thinking, 'wow, we are going to be part of something here, we are going to change lives!’ I'm still overwhelmed with the love, generosity and compassion of people!”
"There is so much hope today to find solutions for this disease, if I don't fundraise, it means stopping progress in its tracks."
"Un petit Pas pour une géante enjambée dans le progrès de la recherche." Translation: "One Small Step for a giant leap in the progress of research."